As most people were winding down last Friday night, Andrea Howell鈥檚 work was just getting started.
As a direct support professional, Howell provides care for people with intellectual and developmental disabilities. She spends her Fridays caring for Amber and Tonisha, two clients living at a group home in Olathe.
Any other day, she鈥檇 be cooking dinner after picking them up from their day activities. But Fridays mark a special event in the home 鈥� when they celebrate the end of their week by eating out.
鈥淲here are you going to dinner today? What do you want to eat?鈥� Howell asks the girls. Amber chants her favorite spot, McDonald鈥檚, which Howell says she picks almost every week.
It鈥檚 the end of a long week for Howell, who usually spends around 50 hours a week at the group home. And she has another caretaking job on top of that.
That staggering workload is all too familiar to direct care workers nationwide as the industry grapples with a chronic staffing shortage that鈥檚 been exacerbated by the COVID-19 pandemic.
鈥淲e were (in) a workforce crisis before COVID happened and it, of course, didn't get better. It has continued to get worked up, but just like it has across the entire healthcare spectrum,鈥� says Valerie Huhn, acting director of the Missouri Department of Mental Health.
Huhn says nearly 77% of people that started in the field in 2019 ended up leaving. She suspects the level of pay is largely why people quit.
Huhn says state base wages are now up to about $12 an hour. That pay may have been practical when budgets were made, but the market has drastically changed in the last two years.
That change has driven waves of nurses to leave their local hospitals for higher paying travel jobs elsewhere. Likewise, local agencies say that direct care workers are leaving the field for businesses that have raised their base wages during the pandemic.
That鈥檚 been the case at , the Olathe-based direct care agency that Howell works for. The agency鈥檚 director, Demarcus January, says that in the first two months of the pandemic, his staff roster of about 40 employees declined by half.
January says workers were leaving at first out of safety concerns, when so much about COVID was unknown. But even when case numbers declined, his workers didn鈥檛 return in sufficient numbers to make up for those who left.
He says many left for higher paying gig work at companies like Postmates or Ubereats.
On top of that, January says it鈥檚 hard to attract applicants when businesses and care agencies are all competing for the same limited pool of workers.
鈥淚 mean, our starting salary now, during COVID, and after the initial wave of COVID, has gone from a starting salary of $14, to $15, to $16, just to get people in the door. And that's still not enough,鈥� January says.
He says the team that was left learned 鈥渢o do more with less鈥� by picking up extra shifts and working long hours. He says he makes sure workers aren鈥檛 forced to work overtime, but it鈥檚 difficult to cover shifts when employees suddenly have to quarantine or test positive for COVID.
January says he鈥檚 consolidated their services from 11 to six group homes. Still, he worries about how the shortage has hampered his team鈥檚 ability to expand their services.
鈥淚 think that's gonna be impactful because in business, we all know if you're not growing, you're dying,鈥� January says.
The (ANCOR), an advocacy group for service providers, says the shortage is having consequences for direct care agencies nationwide.
Barbara Merrill, ANCOR鈥檚 CEO, says the field has faced challenges recruiting and retaining staff for more than two decades.
that 77% of providers have turned away or stopped accepting new referrals due to insufficient staffing, a 16.7% increase since the onset of the pandemic. The report also found that 81% providers were struggling to provide the quality of services they strive for.
Merrill says these numbers should be 鈥渁 wake-up call鈥� to policymakers.
鈥淲hat that means plain and simple, is all of the extraordinary progress that we have made in this country over the years of liberating people from living lives in institutions to being able to live in the community like you and I, like anyone else 鈥� we're at extraordinary risk of losing that progress,鈥� she says.
The report noted that 58% of providers had discontinued programs and services because of staffing challenges. That鈥檚 a 70.6% increase from pre-pandemic levels.
Local care providers are grappling with the wrenching decision of whether to cut services as they continue to struggle to retain staff during the pandemic.
The nonprofit serves 5,000 people with disabilities, providing services that range from early childhood programs and community living services to job placement services.
Casey Melancon, the organization鈥檚 director of autism services in Kansas City, says her team declined by about 60% during the pandemic, leaving her with only a handful of workers.
鈥淥ur parent training waiting list has probably 40 to 45 individuals on it right now, which makes me lose sleep at night,鈥� Melacon says. 鈥淭hen our ABA (applied behavior analysis) waiting list has probably about 20 individuals on it currently, and pretty much at any given time. It will just continue to grow.鈥�
Easterseal Midwest鈥檚 CEO Wendy Sullivan says that many people in the agency who do stick around are working overtime to make ends meet, making burnout an issue for even their 鈥渧ery, very best people.鈥�
Hailey Coy, supervisor of employment services at Easterseal Midwest's Kansas City department, says she's 鈥渁bsolutely鈥� feeling that burnout. Her job entails assessing people鈥檚 skill sets to place them and support them in jobs around the community.
That means that when they鈥檙e working, she鈥檚 working. Coy says that by most Sundays, she has no idea what her schedule will look like for the week, but long hours are almost a guarantee.
Coy says she loves her job but admits the pay can be a big factor in attracting new people to direct-support work.
鈥淚 am the one seeking out jobs for individuals and I am seeing entry level positions, like a cashier position, and I make just as much money,鈥� Coy says. 鈥淲ell, that person gets to go home at the end of their shift, and they don't have to worry about the scheduling, the planning.鈥�
That's why organizations like ANCOR are advocating for more funding on a state and national level.
鈥淚t's not a minimum wage job and yet our industry is competing with other minimum wage employers,鈥� Merrill says.
A pay increase could come for some workers if for a $15-an-hour standard pay for state workers becomes law. Parson said in a news release that the raise would seek to address unprecedented turnover in many state jobs.
Merrill says some much needed relief could also come through the Build Back Better plan, a roughly $2 trillion spending bill currently stalled in the U.S. Senate. The plan would allocate $150 billion to improve Medicaid coverage for home care services for seniors and people with disabilities.
Huhn, of the Missouri Department of Mental Health, says even if federal dollars come, it takes time before they reach the states. That鈥檚 why she says they have to look at existing resources, working on recruitment strategies and making more room for upward growth.
Despite the long hours and low pay, Coy says she still loves her job.
鈥淚t's almost like detective work, you get to know an individual and their interests and their strengths and you pair that with a business that you know about and what their environment is like, and what natural supports might be there,鈥� Coy says.
January says that while higher pay may allow care workers to drop their second job, those in this field aren't in it for the money.
鈥淭hey have the option to leave, but the fact that they stay let me know,鈥� January says.
Howell, the direct care worker at Alternative Solutions, says that while better pay might persuade more people to stay in her line of work, people have to really care about what they do.
鈥淚 mean, it can be hard. Long hours, clients are sometimes hard, hard to get along with,鈥� Howell says. 鈥淏ut then you go to another level and you say, 鈥極kay, why am I here?鈥� I'm here to help them to have a better quality of life.鈥�
Howell says her favorite part of the job is when she can tell that she鈥檚 doing a good job.
鈥淥ne that maybe doesn't talk well, and she throws up the hand sign, she loves you, that's the best part of the job,鈥� Howell says. 鈥淥r when they give you a hug and it鈥檚 unexpected, that's the best part of the job 鈥� when you know that you've done your best for them.鈥�
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